Sudden Death Among Young People
Prevention starts with education
Who we are
There is a kind of death we all wish for ourselves and for others: in our advanced old age, after we have completed the cycles of life, after we have experienced joys and sorrows, after we have known love, romance, travel, excesses, sunsets and sunrises, after we’ve done everything we ever dreamed of, may death come and find us in a sweet sleep. Or while we’re taking our daily walk. Or as we raise a glass to make a toast among our loved ones. That is the kind of death we all hope for. Without pain, without being a burden to anyone, without even bothering us.
For the grieving parent
If you are a grieving parent—whether you have lost a child to Sudden Youthful Death or know a parent who is grieving—we want you to know that you are not alone.
Reference Centers
Onaseio
Department of Rare Genetic and Hereditary Cardiac Diseases
Our podcasts
If this has happened to you
When you receive the forensic report call to reference center in your city or county (you'll find this information under the "Reference Centers" category)
Schedule a meeting with treating cardiologist (The relevant office will guide you through the process)
Do you have the forensic medical report with you, and, if any, previous cardiac tests of the person who died.
If you want prevention
If you want to be on the safe side, prevention is your only option. Whether you have a family history of sudden death or simply want to reduce your risk.
Blog
Chara Datsi at the International Conference on Genetics & Precision Medicine in Cardiology: A Testimony Calling for Change
The K. Folbigg Case
FAQ
Sudden Death in Young People refers to sudden deaths among young individuals without any prior obvious symptoms. It is often caused by undiagnosed hereditary heart conditions that can be detected early through targeted testing and genetic screening. Most importantly: In many cases, it can be prevented.
The audit covers:
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Those who have lost a relative to a sudden death,
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Those with a family history of heart disease,
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Young people involved in sports,
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People who experience unexplained fainting spells, arrhythmias, or shortness of breath.
Prevention is not aimed solely at specific groups; protects entire families and future generations.
Don't go it alone. Contact us so we can guide you:
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what documents you need to gather (e.g., a forensic medical report),
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which specialists you should see,
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What tests are necessary for family members,
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How can you claim reimbursement for the costs?
The sooner you act, the greater the chance of saving lives.
Yes. Today we have tools that didn’t exist just a few years ago: specialized cardiac tests, genetic testing, and targeted interventions that can identify dangerous inherited heart conditions before they manifest.
Knowledge and action save lives. Inaction comes at a cost.
With a simple phone call or email, you can:
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to answer questions right away,
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να λάβετε καθοδήγηση βήμα–βήμα,
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to learn about the available programs and exams,
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Join a community of people who are knowledgeable, supportive, and proactive.
You don't have to go through this alone — We're here to help you before it's too late.