If this has happened to you

GUIDANCE

Αν σου έχει συμβεί:

  1. When you receive the forensic report call to reference center in your city or county (you'll find this information under the "Reference Centers" category)

  2. Schedule a meeting with treating cardiologist (The relevant office will guide you through the process)

  3. Do you have the forensic medical report with you, and, if any, previous cardiac tests of the person who died.

  4. The most difficult step: the blood sample from the deceased must be sent from the medical examiner’s office to the Reference Center. And unfortunately, there is no coordination between the agencies, so you have to coordinate with the medical examiner on your own. (For example, I had to go through the Zografou district, where the forensic medical service is located at the Onassis Hospital, which is the Reference Center. A difficult moment. Unbearable.) The goal is to have genetic testing performed on the child first.

  5. At the Referral Center, parents—and possibly siblings—will be asked to undergo a complete cardiological and hematological evaluation. All of these tests are provided free of charge.

  6. You will then receive the results of the genetic test. If no genes are detected, the specialist should check for any recessive gene, that is, whether the gene is located on the X or Y chromosome.

He will ask you to provide another blood sample, which, when analyzed in a specialized test along with your child’s blood sample, will provide you with the final results.

  1. Depending on the results, you will continue testing the remaining family members. All tests are free.

Information

FAQ

What is Sudden Youthful Death?

Sudden Death in Young People refers to sudden deaths among young individuals without any prior obvious symptoms. It is often caused by undiagnosed hereditary heart conditions that can be detected early through targeted testing and genetic screening. Most importantly: In many cases, it can be prevented.

Who is this for, and who should conduct the audit?

The audit covers:

  • Those who have lost a relative to a sudden death,

  • Those with a family history of heart disease,

  • Young people involved in sports,

  • People who experience unexplained fainting spells, arrhythmias, or shortness of breath.
    Prevention is not aimed solely at specific groups; protects entire families and future generations.

What should I do if there has been a case of sudden unexpected death among young people in my family?

Don't go it alone. Contact us so we can guide you:

  • what documents you need to gather (e.g., a forensic medical report),

  • which specialists you should see,

  • What tests are necessary for family members,

  • How can you claim reimbursement for the costs?
    The sooner you act, the greater the chance of saving lives.

Can Sudden Youthful Death Be Prevented?

Yes. Today we have tools that didn’t exist just a few years ago: specialized cardiac tests, genetic testing, and targeted interventions that can identify dangerous inherited heart conditions before they manifest.
Knowledge and action save lives. Inaction comes at a cost.

How can I contact the Association, and what are the benefits?

With a simple phone call or email, you can:

  • to answer questions right away,

  • να λάβετε καθοδήγηση βήμα–βήμα,

  • to learn about the available programs and exams,

  • Join a community of people who are knowledgeable, supportive, and proactive.

You don't have to go through this alone — We're here to help you before it's too late.

Contact

Contact us