If you want prevention

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If you want prevention

If you want to be on the safe side, prevention is your only option. Whether you have a family history of sudden death or simply want to reduce your risk, here are the steps to take:

  • Select a Reference Center or a verified scientific center to make the genetic testing done to your child and to you.
  • Ideally, all members of the extended family should be screened—including your siblings, if you have any. This significantly reduces the chances of missing a recessive gene.
  • The costs are predictable, but believe me, a funeral will cost you more...
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Information

FAQ

What is Sudden Youthful Death?

Sudden Death in Young People refers to sudden deaths among young individuals without any prior obvious symptoms. It is often caused by undiagnosed hereditary heart conditions that can be detected early through targeted testing and genetic screening. Most importantly: In many cases, it can be prevented.

Who is this for, and who should conduct the audit?

The audit covers:

  • Those who have lost a relative to a sudden death,

  • Those with a family history of heart disease,

  • Young people involved in sports,

  • People who experience unexplained fainting spells, arrhythmias, or shortness of breath.
    Prevention is not aimed solely at specific groups; protects entire families and future generations.

What should I do if there has been a case of sudden unexpected death among young people in my family?

Don't go it alone. Contact us so we can guide you:

  • what documents you need to gather (e.g., a forensic medical report),

  • which specialists you should see,

  • What tests are necessary for family members,

  • How can you claim reimbursement for the costs?
    The sooner you act, the greater the chance of saving lives.

Can Sudden Youthful Death Be Prevented?

Yes. Today we have tools that didn’t exist just a few years ago: specialized cardiac tests, genetic testing, and targeted interventions that can identify dangerous inherited heart conditions before they manifest.
Knowledge and action save lives. Inaction comes at a cost.

How can I contact the Association, and what are the benefits?

With a simple phone call or email, you can:

  • to answer questions right away,

  • να λάβετε καθοδήγηση βήμα–βήμα,

  • to learn about the available programs and exams,

  • Join a community of people who are knowledgeable, supportive, and proactive.

You don't have to go through this alone — We're here to help you before it's too late.

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