What we do

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What we do

Prevention of Sudden Death in Young People

The purpose of the Association is to prevent sudden death in young people and sudden death caused by hereditary heart diseases.
Via:

  1. Promoting the inclusion in the public health care system of the necessary genomic diagnostic tests for the early detection of genetic disorders associated with sudden death.
  2. To inform and raise public awareness about the causes and risk factors of sudden death in young people.
  3. Its contribution to the elimination of genetic diseases that cause sudden death in future generations.
  4. Support for families affected by cases of sudden youth death.
  5. To promote scientific research in the field of preventing sudden death in young people.
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Means of achieving the objectives

To achieve its objectives, the Association:

  1. It organizes informational events, workshops, conferences, and seminars.
  2. It publishes and distributes informational materials in both print and digital formats.
  3. It collaborates with scientific institutions, universities, research centers, hospitals, and other organizations in Greece and abroad.
  4. It organizes awareness-raising activities in schools, sports clubs, and other places where young people gather.
  5. It collaborates with government agencies to develop health policies aimed at preventing sudden death among young people.
  6. It is promoting legislative initiatives to incorporate genetic testing into the public health system.
  7. It supports scientific research through scholarships and funding for research programs.
  8. It creates networks of volunteers to support its activities.
  9. It engages in any other lawful activity that contributes to the achievement of its objectives.
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Information

FAQ

What is Sudden Youthful Death?

Sudden Death in Young People refers to sudden deaths among young individuals without any prior obvious symptoms. It is often caused by undiagnosed hereditary heart conditions that can be detected early through targeted testing and genetic screening. Most importantly: In many cases, it can be prevented.

Who is this for, and who should conduct the audit?

The audit covers:

  • Those who have lost a relative to a sudden death,

  • Those with a family history of heart disease,

  • Young people involved in sports,

  • People who experience unexplained fainting spells, arrhythmias, or shortness of breath.
    Prevention is not aimed solely at specific groups; protects entire families and future generations.

What should I do if there has been a case of sudden unexpected death among young people in my family?

Don't go it alone. Contact us so we can guide you:

  • what documents you need to gather (e.g., a forensic medical report),

  • which specialists you should see,

  • What tests are necessary for family members,

  • How can you claim reimbursement for the costs?
    The sooner you act, the greater the chance of saving lives.

Can Sudden Youthful Death Be Prevented?

Yes. Today we have tools that didn’t exist just a few years ago: specialized cardiac tests, genetic testing, and targeted interventions that can identify dangerous inherited heart conditions before they manifest.
Knowledge and action save lives. Inaction comes at a cost.

How can I contact the Association, and what are the benefits?

With a simple phone call or email, you can:

  • to answer questions right away,

  • να λάβετε καθοδήγηση βήμα–βήμα,

  • to learn about the available programs and exams,

  • Join a community of people who are knowledgeable, supportive, and proactive.

You don't have to go through this alone — We're here to help you before it's too late.

Contact

Contact us